Tuesday, September 13, 2011
SAVE THE DATE!!!!
My brother and his friend will be putting on a fundraiser on Saturday, October 15th. It is a bike ride in Huntington Beach! We need all the participants we can get! I will have more info soon and post it as soon as I get it! Thanks!!
Another chemo week!
Sept 6th~ Today I had my regular doctor appt with the oncologist physicians assistant. It was pretty routine except they let me know I would not be going on the extra chemo drug, Avastan (I think this is the spelling), like they wanted me to. This drug would cause extra bleeding, like nose bleeds and things like that. But, they told me that my tumors were too fragile and would end up bleeding too much. I was torn by this, because I have heard this is the chemo that is a "wonder drug" as the PA described it. But, I am sick of chemo already and don't want more drugs running through me. Already, as soon as I get my chemo out, I am dreading the next time. They said this was normal, but sometimes I actually get sick to my stomach thinking about it. So please pray for God's will to be done with the Avastan. If it will heal me, pray my tumors toughen up!!!! I just want to be healed so badly and back to my regular life with my husband and kids. When I got home, my family friend Dave, came to uplift me and pray with me as he does every Monday before chemo! It feels good to get recharged by prayer and the word before I sit in the chair for hours having poison pumped into me.
Sept 7th~ It was chemo day. They added more Benedryl and Steroids to my cocktail because my tongue was going numb after chemo and I was feeling sick during the last 30 minutes of chemo. So I ended up conking out during chemo from the Benedryl. I felt weird after it was over, just worn out, like I needed to lay down for a couple of days! I got leg cramps that night and really whiny! YES!! I get very emotional after chemo, sometimes for days! LOL!! Sometimes, I want to stamp my feet and cry and say, "WHY ME??" But usually just Jon sees that side of me!
Sept 9th~ nothing new today! Just got my chemo out and went shopping afterward! I feel so free when I get my chemo out! But, for some reason, I am still feeling a little off from chemo. It took me until today (september 13th) to write this post because I am just feeling weird from chemo still! I can function, but I am not feeling normal. I just can't get comfortable. I have not been sleeping well either! I think it all goes together!
Keep me and my family in your prayers as always! God will heal me! Just in His time, not mine! If it were my time, I would be healed already! LOL!!
Sept 7th~ It was chemo day. They added more Benedryl and Steroids to my cocktail because my tongue was going numb after chemo and I was feeling sick during the last 30 minutes of chemo. So I ended up conking out during chemo from the Benedryl. I felt weird after it was over, just worn out, like I needed to lay down for a couple of days! I got leg cramps that night and really whiny! YES!! I get very emotional after chemo, sometimes for days! LOL!! Sometimes, I want to stamp my feet and cry and say, "WHY ME??" But usually just Jon sees that side of me!
Sept 9th~ nothing new today! Just got my chemo out and went shopping afterward! I feel so free when I get my chemo out! But, for some reason, I am still feeling a little off from chemo. It took me until today (september 13th) to write this post because I am just feeling weird from chemo still! I can function, but I am not feeling normal. I just can't get comfortable. I have not been sleeping well either! I think it all goes together!
Keep me and my family in your prayers as always! God will heal me! Just in His time, not mine! If it were my time, I would be healed already! LOL!!
Thursday, September 8, 2011
Colonoscopy
Aug 31st~ Today was the prep day for the colonoscopy! NOT FUN!! I had to drink a liter of the grossest drink ever within 1 hour. Then repeat it again 5 hours later! I barely got the first liter down without throwing it up. I was just about gagging on every drink. The 5 hours seemed to fly by and I was not mentally prepared for the next liter. I mixed the drink with lemonade and went to take the first drink of the 2nd liter. As soon as it hit my stomach, it came right back up, I barely made it to the sink! What was supposed to take me 1 hour to drink, took me 3 hours and I didn't even finish it all. I know, shame on me!! After I was done with the drink, it was like a weight lifted off me! But I vowed that I will never do another colonoscopy again!!!!!!
Sept 1st~ I went in STARVING to the Colonoscopy. I got right in and within an hour, I was under and the procedure was over before I knew it. Dr Mathews came in, he is my GI doctor, and he said the tumor shrank!! He could not give me a percentage because he couldn't get a measurement the first time because he couldn't get the camera through the tumor. This time he could perform a full colonoscopy. But he did find that my tumor is still fragile and weeping so they will not be putting me on the new chemo medicine! I don't know how I feel about that, when I thought I had to add another med it freaked me out, but now I am freaked out that I am not going to be on it! Go figure!!
Sept 2nd~ Today I went with my friend Susie to Rico De Benitz salon, and got my hair cut off! They put it in a ponytail and cut off almost 15 inches!! I am donating it to Locks of Love! It is an organization that makes wigs with donated hair for children with cancer! Because I donated my hair, my stylist didn't charge me a penny for the hair cut!!! I love how easy it is to manage now. I had to cut it, it just keeps falling out and this way its easier to deal with!
Like always, keep me in your prayers! They are working! I need to stay healthy for my babies! Jonny started Soccer and he is on a really good team! So my Saturdays are booked from here until November! But I love watching him play! He loves this sport and has a constant smile on his face the entire game!!
Sept 1st~ I went in STARVING to the Colonoscopy. I got right in and within an hour, I was under and the procedure was over before I knew it. Dr Mathews came in, he is my GI doctor, and he said the tumor shrank!! He could not give me a percentage because he couldn't get a measurement the first time because he couldn't get the camera through the tumor. This time he could perform a full colonoscopy. But he did find that my tumor is still fragile and weeping so they will not be putting me on the new chemo medicine! I don't know how I feel about that, when I thought I had to add another med it freaked me out, but now I am freaked out that I am not going to be on it! Go figure!!
Sept 2nd~ Today I went with my friend Susie to Rico De Benitz salon, and got my hair cut off! They put it in a ponytail and cut off almost 15 inches!! I am donating it to Locks of Love! It is an organization that makes wigs with donated hair for children with cancer! Because I donated my hair, my stylist didn't charge me a penny for the hair cut!!! I love how easy it is to manage now. I had to cut it, it just keeps falling out and this way its easier to deal with!
Like always, keep me in your prayers! They are working! I need to stay healthy for my babies! Jonny started Soccer and he is on a really good team! So my Saturdays are booked from here until November! But I love watching him play! He loves this sport and has a constant smile on his face the entire game!!
Wednesday, August 24, 2011
GOD IS GOOD!!
Aug 22nd~ I went in for my regular dr appt and then off to my ct scan! I was so nervous to do the scan for some reason! But really that is my scaredy cat personality! LOL! So there were a few tears right before the scan while sitting on the machine getting stuck with a needle for the contrast. I don't know what I was so scared of. The nurse calmed me down and I went in the machine. I just took that time to pray because I needed to feel God's arms around me and I did! I just relaxed completely at that point! By the time it was over they said that they would try to get the results to the doctor as soon as they could. Deep down, I just wanted the day to chill out and not think about anything. By 5:15pm, Jon couldn't handle it anymore and called the doctor, but he was already gone for the day.
Aug 23rd~ We got up and went in for our full day of chemo! We are usually there from 9:30am to about 2:30pm. It is a long day and by the last half hour, I am feeling sick and look really bad! During my chemo, Dr Panares came in with my results. I was so nervous! I could hardly listen. He could see my nerves and told me it was really good news! He said that the tumors on my ovaries have shrunk 50%, the cancer in my liver shrunk by 40%, but the cancer in my lungs stayed the same. He said he expected that tho. He also said there were some kind of protein numbers for my lungs they have been following, normal healthy lungs are less than 3. With my first blood work, my number was 120!!! Well as of Monday it was down to 45! So it is doing something to my lungs! We don't know about the colon tumor yet. We find out next week after the Colonoscopy! Please pray for me during the prep day before the colonoscopy! It was very hard on me last time!
Aug 24th~ I think that yesterday was a lot for me! I am plugged into my chemo as usual, but I didn't get out of bed until 3:30pm!!!!! I am usually up by 9am on the day after chemo!
Please keep praying! God is listening! He is so good and I am so thankful for all the healing he has done in me so far!! Praise the Lord!!
Aug 23rd~ We got up and went in for our full day of chemo! We are usually there from 9:30am to about 2:30pm. It is a long day and by the last half hour, I am feeling sick and look really bad! During my chemo, Dr Panares came in with my results. I was so nervous! I could hardly listen. He could see my nerves and told me it was really good news! He said that the tumors on my ovaries have shrunk 50%, the cancer in my liver shrunk by 40%, but the cancer in my lungs stayed the same. He said he expected that tho. He also said there were some kind of protein numbers for my lungs they have been following, normal healthy lungs are less than 3. With my first blood work, my number was 120!!! Well as of Monday it was down to 45! So it is doing something to my lungs! We don't know about the colon tumor yet. We find out next week after the Colonoscopy! Please pray for me during the prep day before the colonoscopy! It was very hard on me last time!
Aug 24th~ I think that yesterday was a lot for me! I am plugged into my chemo as usual, but I didn't get out of bed until 3:30pm!!!!! I am usually up by 9am on the day after chemo!
Please keep praying! God is listening! He is so good and I am so thankful for all the healing he has done in me so far!! Praise the Lord!!
Sunday, August 21, 2011
Vacation
Aug 16th~ We left for Laughlin, NV! We had a blast! We took the boat out and the kids all tried wake boarding for the first time! They loved it! We had a very relaxing time. We actually decided to stay an extra day! 3 days were just not long enough for a much needed vacation. Our family has been through so much this year, we needed to let off some steam. Almost our entire family went, my grandma even got to come! Thank you to everyone who prayed for our vacation. While on vacation, I actually cut my pain meds from every 4 hours to only taking them 1 time in the morning and 1 time at night!
Tomorrow is my doctor appointment at 8:15am, then after that I will be getting my 8 week ct/scan at 11:30! Please pray the tumors have significantly shrunk! I will update tomorrow or Wednesday when I find out the results. I can't promise to update Tuesday due to chemo that day. I really feel like death warmed over after that 5 hour event!
As always, keep me and my whole family in your prayers! Thank you!!
Tomorrow is my doctor appointment at 8:15am, then after that I will be getting my 8 week ct/scan at 11:30! Please pray the tumors have significantly shrunk! I will update tomorrow or Wednesday when I find out the results. I can't promise to update Tuesday due to chemo that day. I really feel like death warmed over after that 5 hour event!
As always, keep me and my whole family in your prayers! Thank you!!
Tuesday, August 9, 2011
God is good!
Aug 8th~ Today is my grandma Casey and my nephew Aaron's birthdays!! Happy birthday to them!
I went to the doctor today and Dr Panares gave us (me, Jon and Susie) some encouraging news!! He said my hemoglobin is rising in numbers!! I am still anemic, but this is a sign that the tumors are shrinking!!! PRAISE THE LORD! Please keep praying, because it is working. He also scheduled my CT scan for the 22nd. I will go in at 11:30am, 2 hours before the procedure, drink some radioactive stuff out of a lead container, and then get the scan done. It will show all the cancer and let us know if the chemo is working. I keep getting asked if I will have a break from Chemo. The answer is no! As of now, there is no end in sight. We will continue chemo until the Lord delivers me from this disease! Another question I get is about surgery. The dr does not want me having surgery because there is a chance of spreading the cancer when you mess with it. The other question I get a lot is about radiation. Radiation is for a specific spot. If I had 1 tumor, they would probably do radiation. But I have multiple tumors and the cancer is splattered in my lungs and liver, so this would not work! After the doctors appointment, Dave, came over and talked with me and prayed with me and my mom. This is such a blessing!! After he leaves, I feel a weight lifted off of me. He reminds me that the devil is a liar and will try anything to make me think I am not going to watch my babies grow into adults! That is all I want! I am not scared of dying, I just can't IMAGINE leaving my kids motherless! They do not deserve that! Boy that Satan can really get your mind going sometimes though!
Aug 9th~ Today was Chemo. It really kicked my butt today! I am exhausted! My legs are already achy, so I am hoping Jon will let me skip tonight's walk. But I doubt it, he has already mentioned it 2 times! I love walking with him. It is so peaceful and quiet and we just talk about nothing and everything! Then we come in and he reads the Bible aloud to me in bed. We have really become a lot closer lately. I know this is taking a huge toll on him, on all of us really. But this is bringing up memories of losing his mom. I keep reminding him that she was ready to go home to be with Christ. I know that Christ has more for me to do on this earth. This is just another bump in what has been a VERY bumpy road, that we have call our life! We have been through so much, losing his mom, my mom and her nuerofibromitosis, a miscarriage, losing our home, a surprise pregnancy at a very inopportune time in our lives and now cancer! What doesn't kill us, makes us stronger, right? Any ways, I got off track! Shocking, I know!! LOL!
During my treatment today, Dr. Panares walked into my private room (yes!!! I got the private room again!! (: ) He told us he had more good news! another test he does with the blood work (I am not sure what it is and if anyone out there knows, please comment! I think it has something to do with cancer proteins? I don't know) I was too out of it to ask what exactly the test was, but he said the numbers were going down and that is another sign that the cancer is shrinking!!!! Jon and I were very excited to hear this! He told us to have fun on our vacation and that he would see us when we got back!
Please pray that this time after Chemo would go as smoothly if not more smoothly than last time! We are leaving for vacation on soon and I want to be strong and over any kind of sickness by then! Please pray for Jon and my spirits, to keep the devil from playing mind tricks with us! We love you all very much and thank you so much for all your support!
I went to the doctor today and Dr Panares gave us (me, Jon and Susie) some encouraging news!! He said my hemoglobin is rising in numbers!! I am still anemic, but this is a sign that the tumors are shrinking!!! PRAISE THE LORD! Please keep praying, because it is working. He also scheduled my CT scan for the 22nd. I will go in at 11:30am, 2 hours before the procedure, drink some radioactive stuff out of a lead container, and then get the scan done. It will show all the cancer and let us know if the chemo is working. I keep getting asked if I will have a break from Chemo. The answer is no! As of now, there is no end in sight. We will continue chemo until the Lord delivers me from this disease! Another question I get is about surgery. The dr does not want me having surgery because there is a chance of spreading the cancer when you mess with it. The other question I get a lot is about radiation. Radiation is for a specific spot. If I had 1 tumor, they would probably do radiation. But I have multiple tumors and the cancer is splattered in my lungs and liver, so this would not work! After the doctors appointment, Dave, came over and talked with me and prayed with me and my mom. This is such a blessing!! After he leaves, I feel a weight lifted off of me. He reminds me that the devil is a liar and will try anything to make me think I am not going to watch my babies grow into adults! That is all I want! I am not scared of dying, I just can't IMAGINE leaving my kids motherless! They do not deserve that! Boy that Satan can really get your mind going sometimes though!
Aug 9th~ Today was Chemo. It really kicked my butt today! I am exhausted! My legs are already achy, so I am hoping Jon will let me skip tonight's walk. But I doubt it, he has already mentioned it 2 times! I love walking with him. It is so peaceful and quiet and we just talk about nothing and everything! Then we come in and he reads the Bible aloud to me in bed. We have really become a lot closer lately. I know this is taking a huge toll on him, on all of us really. But this is bringing up memories of losing his mom. I keep reminding him that she was ready to go home to be with Christ. I know that Christ has more for me to do on this earth. This is just another bump in what has been a VERY bumpy road, that we have call our life! We have been through so much, losing his mom, my mom and her nuerofibromitosis, a miscarriage, losing our home, a surprise pregnancy at a very inopportune time in our lives and now cancer! What doesn't kill us, makes us stronger, right? Any ways, I got off track! Shocking, I know!! LOL!
During my treatment today, Dr. Panares walked into my private room (yes!!! I got the private room again!! (: ) He told us he had more good news! another test he does with the blood work (I am not sure what it is and if anyone out there knows, please comment! I think it has something to do with cancer proteins? I don't know) I was too out of it to ask what exactly the test was, but he said the numbers were going down and that is another sign that the cancer is shrinking!!!! Jon and I were very excited to hear this! He told us to have fun on our vacation and that he would see us when we got back!
Please pray that this time after Chemo would go as smoothly if not more smoothly than last time! We are leaving for vacation on soon and I want to be strong and over any kind of sickness by then! Please pray for Jon and my spirits, to keep the devil from playing mind tricks with us! We love you all very much and thank you so much for all your support!
Monday, August 1, 2011
Christianne's Fight Club
Aug 1st~ I found out a few days ago that my sister Betsy, cousin Melissa (from NC) and my aunt Sandi (from NC) designed and had t-shirts made to help raise money for my medical bills! I can't believe the out pouring of love from everyone, especially my family!! I am really overwhelmed by all the help and support people, even strangers are giving me and my family!
The shirts are $20, that includes shipping and everything. To purchase a shirt email christiannesfightclub@hotmail.com Sizes range from youth small to Adult 4XL! Please email Melissa or Betsy, at the email above, if you are interested with your address and size! Thanks!!
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